Category: Resources and support
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Navigating caregiver guilt
I was recently honoured to be invited by Being Patient Voices to write a Voices essay, and I jumped at the chance to share my story. Being Patient Voices is a fantastic resource for learning more about dementia.
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Admiral Nurses
Admiral Nurses provide vital support for families affected by dementia, offering both practical advice and emotional care. Talking to one helped me understand my dad’s needs, navigate visits, and feel less alone.
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A thank you to Wendy Mitchell for her work on dementia
Wendy Mitchell’s writing offered a powerful, personal insight into life with dementia—illuminating what my father could never express. Her courage, honesty, and warmth helped me better understand his journey. This tribute reflects on what her work meant to me, and why her voice will continue to resonate far beyond her death.
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What I wish I’d known: reflections for Dementia Action Week
During Dementia Action Week, I reflect on the journey of coping with a loved one’s dementia. Dementia is different for everyone, but it’s important to share memories while you can, seek support, and remember the power of simple presence. I also share some resources that I have found useful.
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Books about a parent with dementia
I was surprised when I realised how few books or blogs I could find that reflected the experience of what it is to have a parent with dementia. Here are three books that brought me a better understanding of what has been happening and made me feel less alone.
dementia in the family 